A young woman wrote this beautiful post about her own death before she passed away

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A Welsh woman who lived with a rare degenerative condition passed away on New Year’s Day – and she left behind an inspiring message for her family to share with the world.

Amy Garton-Hughes lived with genetic disorder Cockayne Syndrome which causes premature ageing and other health complications.

Doctors previously told Amy’s family she wouldn’t survive into the New Year and they announced on social media that she “became an angel” on January 1.

But she left behind a message that she wanted to be shared with the world.



Amy Hughes from Flintshire and Nick Jaminet from Texas

The 28-year-old made it her life’s work to educate people about her condition, North Wales Live reports.

In the inspiring message, she wrote: “My name is Amy – I am 28 and today on 1st January 2020 at 12.15 I became an angel.

“My life has been amazing – a doctor once said that because of my degenerative illness (Cockayne Syndrome) I would have no friends. How wrong you were. I literally have thousands and thousands of friends.

“When I was 10 a head teacher of my school said that I would never be like others. I’d never have a job. I have had and still have the most important job ever. My job was, and is, to teach the world about Cockayne Syndrome/XRCC4/ Trichothiodystrophy and I have done my job with dedication.

“I have helped mummies, daddies, brothers, sisters, friends, doctors and people I don’t know. I have taught them how to love, how to laugh, how to never give up.

“I have taken my final earthly breath and now I am free to fly to my many friends who are waiting for me. Imagine the joy I am experiencing.”

“My name is Amy – I am 28 and today on 1st January 2020 at 12.15 I became an angel.

My life has been amazing – a doctor once said that because of my degenerative illness (Cockayne Syndrome) I would have no friends – how wrong you were – I literally have thousands and thousands of friends.

When I was 10 a headteacher of my school said that I would never be like others – I’d never have a job – I have had and still have the most important job ever – my job was and is to teach the world about Cockayne Syndrome/XRCC4/ Trichothiodystrophy and I have done my job with dedication.

I have helped mummy’s, daddy’s, brothers, sisters, friends, doctors and people I don’t know. I have taught them how to love, how to laugh, how to never give up.

I have taken my final earthly breath and now I am free to fly to my many friends who are waiting for me. Imagine the joy I am experiencing.
To those of you that I leave behind – I know you’ll cry for me – I want you to cry for a little bit and then I want you to stop and live your lives – make sure you live them well.

Do as I once could – dance, light up the room, sing as loud as you can – who cares if you’re not in tune! Take time for your friends – have a cuppa with them – tea was my favourite, 2 sugars (Mum I know you only put half a teaspoon in but I made everyone else put 2 teaspoons in!!) Take joy from the smallest of things and most of all love with all of your heart.

Know that I am keeping you in my heart and we will meet again one day.

A lovely Indian doctor once gave me a name ‘Diya’ (pronounced dear) – he said it was a little clay lamp that shined brightly giving warmth and light to everyone who saw it……I will keep shining and sending you lovely warm fuzzy feelings when you think of me….

In the meantime look for rainbows, butterflies and Minis (my ultimate dream was to buy a pink mini, drive to my true love Nick and go on a road trip to Disney!)

I love you all – but you know that already ❤

I have left a special message for you below – it’s meant to make you laugh because that’s what I love to do. Laugh with me when you see it.

Share my story and think of me – I love you ❤”

More than 700 people sent tributes and messages of condolence to Amy’s family after the message was shared on Facebook.

Ronda Kay said: “Fly high and pain free beautiful girl, give my Kimmy a cuddle xxxx”



Amy celebrated a wedding-style blessing with her partner Nick Jaminet in 2010.

Sharon Stanton messaged: “Sing and dance with the angels now Amy. Sending your family a big hug xx”

Pearl Elizabeth wrote: “We love you Amy and are so fortunate to have met you and called you our friend.”

Amy, of Flintshire, first made headlines after “marrying” a Texas man with the same disorder in 2010 in a wedding-style blessing.

The couple met when at a medical conference in Boston, Massachusetts, when they were teenagers.



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